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rheumatoid arthritis

You are currently browsing articles tagged rheumatoid arthritis.

Hey gang, apologies for my sporadic posting lately. It seems that after I came down with a virus in September that I have not been good about getting myself back on a regular posting schedule. I think it’s a combination of simply being quite busy and also feeling spent at the end of the day. I come home from working eight hours and just want to veg, but then, of course, feel bad about just vegging because there are twenty other things I “should” be doing. It’s not like someone is standing over me, wagging their finger saying, “Sheryl, you should be cleaning your kitchen.” It’s always my voice that just can’t seem to give myself a break. Argh, I think I will be working on managing (and talking back to) that voice for the rest of my life. I digress…

The good news is, I’m back in action and committed to resuming my regular postings. Please feel free to join the discussion and comment. I’d love to hear from you!

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Comic-Con Exhibition HallI’ve had RA for 11 years, yet I still need to be reminded to be good to my body and not overdo it. Two weeks after the Juvenile Arthritis Conference, feeling more committed to taking better care of myself, I went down to San Diego for the annual monstrosity that is Comic-Con. For those of you who have never been, the convention is a gigantic world where comic books, movies, TV, collectibles (and more) collide to create a sensory overload. Trust me. It’s a whole lot of fun, but it means a lot of walking and standing. These lessons may seem obvious, but when you mix Rheumatoid Arthritis with stubbornness… well, you guys understand.

The Lessons:

  • Take regular sitting breaks to rest the feet.
  • Don’t forget to take your medicine even if you get back to the hotel room late and just want to crash. Your body worked overtime today and the meds will help you achieve a better tomorrow.
  • It’s okay to wear light colored sneakers (instead of your cute, but uncomfortable open toed heels) with dark jeans and a dressy black top because comfort sometimes must win over style.
  • When your sweet boyfriend suggests taking a taxi back to the hotel, rather than walking a mile, don’t say, “I think I’ll be okay to walk.” The appropriate response is, “Thanks for looking out for me; that’s a great idea.”

How do you manage a long day of standing and walking? Leave your suggestions in the comments.

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I stumbled across this fun li’l web tool (aka time-suck) the other day and tried it out by making a cloud with all the words that came to mind when I spent a few minutes thinking about how I manage my disease. Here’s my result.  I also used this tool to create a simple header for my blog until I get the snazzier one uploaded.

Create your own and post a link to it in the comments!

Wordle [via Lifehacker]

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